I’m 36 hours out of surgery #19, and things are not going as I expected. (Do they ever?). I’ve got A LOT more pain than I anticipated. I had a procedure like this once previously, and I don’t recall the discomfort being anywhere near this bad – however, I also had a major abdominal wall rebuild and stoma relocation at the same time, so I spent a month in the hospital on a PCA pump, with a nurse changing all the dressings in the perianal area, so perhaps my memory is a bit skewed 😉
At any rate – YOWSERS! Any time I move, the gauze packed in and covering the wounds rubs and it FEELS LIKE SANDPAPER IS BEING RAKED OVER THE RAW TISSUE. Sorry for that visual – I’m just keepin’ it real. And then there’s peeing. It feels like acid is being poured over my lady bits. I’ve been given a lovely peri bottle to use to “ease the discomfort”. HA! Suffice to say, I have a gained a whole new perspective on the pain that must be experienced by burn victims, and cannot imagine this type of agony over an entire limb, or whole body.
Now, don’t fret – I have good ol’ Percocet to help me with the pain. However, it seems in my old age, that one Percocet does ABSOLUTELY NOTHING, but two Percocets KNOCK ME ON MY ASS. So what’s a girl to do? Walk around with sandpaper on her privates, or lay (sitting is not yet an option) comatose on the couch watching Netflix? I have vacillated between the two today. I think I am higher than a kite right now because I just wrote an entire blog about sandpaper and acid on my perianal area. Don’t do drugs kids – they lead to oversharing.
Sorry to those I’ve just scarred. Crohn’s disease is relentless, and it’s extraintestinal manifestations aren’t for the faint of heart. Deal with it.
I have to.